Shay Provenzano

My official name is David Shea Provenzano.Copy of Untitled design

August 29, 1977 – February 1, 2016

I can not put into words how touched I am by the Road Warriors generosity.  There are some days when I can barely move let alone run. I was captain of the track team in high school and was recruited way back when to MSU and UofM for football. I never ended up going because I knew its not what I wanted to do in life.

unnamed-1So right now I just have to watch my mom, my brother, girlfriend Kelly do exercise and stay fit. I look forward to the day when I can do something again.

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I did want to share with you my story …

In January of 2013 (very cold in the garage) I was doing lunges and I found a massive bump protruding from my left hip. Come to find out, it was synovial sarcoma inside of my gluteus medius muscle. 5cm in diameter. My surgeon who is a sarcoma specialist said I was very lucky to have found it so quickly. It had not spread to my lungs as of yet.

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Despite having the muscle completely removed, I’m still able to walk without rocking back and forth and I could at the time still deadlift and squat. Eventually, it moved to my lungs and I had to start chemo.

I did 6 rounds of chemo and my tumors were stable and it seemed like they were dead. It was an awesome summer.

In Sept 2014 I found out that my tumors in my lungs were growing again and it showed up in my hip just outside of the original site. During this time I was discussing options. They were scheduling me for chemo when I started to get stomach pain. I went to the ER and we discovered that it had spread to my pancreas. Not only that, but it had exploded. Growing almost 1 full cm a week. I was misdiagnosed as it being pancreatic cancer. I was told I had 2 to 3 months to live.

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Luckily, it was my sarcoma. Though it is very very rare that it goes to the pancreas. Even my surgeon called me and said “this is not the path it takes.”

I did 4 more rounds of chemo … and then I started looking for trials. And now we are where we are today.

Again, thank you so much. I wont let it beat me. Even if its to my last breath.

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